Kanya Oul, RN

Dermatologists Drs Tina Bhutani and Scott Boswell and patient Kanya Oul share resources and tools available to cope with generalized pustular psoriasis (GPP).

Tips for Managing Generalized Pustular Psoriasis (GPP)

This is a video synopsis/summary of a panel discussion involving Tina Bhutani, MD; J. Scott Boswell, MD; and Kanya Oul, RN.

In the concluding segment of the discussion, Kanya emphasizes the importance of healthcare providers listening to their patients and believing their experiences. She credits her doctor with saving her life and underscores the significance of finding a reliable healthcare provider who understands the patient's condition. Kanya encourages providers to educate themselves and be proactive in referring patients for appropriate care.

The speaker echoes the importance of education, stressing the need for healthcare professionals to stay updated on advancements in their field. He emphasizes the role of primary care physicians and emergency medicine practitioners in recognizing and treating severe skin conditions like generalized pustular psoriasis (GPP). The speaker shares his proactive approach to adopting new treatments for the benefit of his patients.

Overall, the discussion highlights the importance of patient-provider communication, education, and collaboration in effectively managing conditions like GPP. The participants express gratitude for the opportunity to share their insights, underscoring the value of such discussions in improving patient care.

Video synopsis is AI-generated and reviewed by HCPLive editorial staff.

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Coping With and Support for Generalized Pustular Psoriasis (GPP)

The conversation delves into coping mechanisms for dealing with autoimmune diseases, particularly psoriasis. Kanya shares her personal journey of learning to cope with the condition since childhood, highlighting the importance of social support from friends and family. She emphasizes the lack of formal therapy in her upbringing due to various factors but acknowledges the value of seeking support as an adult.

The speaker underscores the systemic nature of psoriasis and the need for comprehensive patient care beyond just treating the skin. He discusses strategies for assessing the impact of the disease on patients' lives, including open communication about symptoms and the benefits of treatment. The discussion also touches on the challenges of finding accurate information and support resources, with emphasis on the role of healthcare providers in guiding patients to evidence-based resources.

Overall, the conversation underscores the importance of social support, accurate information, and comprehensive care in managing autoimmune diseases like psoriasis. It highlights the need for healthcare providers to address the mental health impact of these conditions and guide patients to appropriate support resources.

A patient and 2 dermatologists discuss the impact of generalized pustular psoriasis (GPP) on patient’s quality of life.

Impact of Generalized Pustular Psoriasis (GPP) on the Quality of Life

The discussion centers on the profound impact of psoriasis, particularly plaque psoriasis and generalized pustular psoriasis (GPP), on patients' quality of life. The conversation explores how these conditions lead to feelings of embarrassment and stigma, affecting patients' mental health and overall well-being. Kanya, who has experienced psoriasis since childhood, shares her personal journey, highlighting the challenges of managing flare-ups and the persistent mental toll of living with a chronic disease.

Despite efforts to control her condition with treatments like isotretinoin, Kanya still grapples with feelings of self-consciousness and depression. She recounts instances of hiding her skin and enduring insensitive comments from others, emphasizing the ongoing struggle to feel comfortable in her own body. Even during periods of remission, Kanya experiences lingering reminders of her condition, such as post-inflammatory hyperpigmentation, which further affects her confidence and self-image.

The speaker acknowledges the complex interplay between physical symptoms and mental health, noting the heightened prevalence of depression and anxiety among psoriasis patients. He stresses the importance of addressing these psychological aspects in patient care, advocating for comprehensive support that includes mental health interventions alongside medical treatment.

The dialogue underscores the need for healthcare providers to consider the holistic impact of psoriasis on patients' lives, beyond just the physical symptoms. By recognizing and addressing the emotional and psychological toll of the disease, clinicians can better support patients in managing their condition and improving their overall quality of life.

discuss unpredictable nature of generalized pustular psoriasis (GPP) and management of flares and GPP between flares.

Unpredictable Nature of Generalized Pustular Psoriasis (GPP) and Treatment

The conversation delves into the impact of intermittent flares on patient Kanya's life and how the availability of treatment has changed her experience. Kanya shares her proactive approach to managing her psoriasis, including regular visits to her doctor and staying vigilant for any changes in her condition. She discusses the comfort she finds in having treatment options like spesolimab, despite initial hesitations about using it during flare-ups. The discussion also touches on Kanya's past experiences with different medications, highlighting her journey through various treatments. The participating speaker commends Kanya's knowledge and advocacy for her condition, emphasizing her role in educating other healthcare providers about psoriasis.

Dermatologists Drs Tina Bhutani and Scott Boswell and patient Kanya Oul discuss unpredictable nature of generalized pustular psoriasis (GPP) and management of flares and GPP between flares.

Kanya Oul, RN

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