Conferences, advocacy, blood donations and other events held throughout September
HANOVER, Md.—The Sickle Cell Disease Association of America will participate in National Sickle Cell Awareness Month in September by holding a series of events and supporting the events of its more than 50 member organizations. National Sickle Cell Awareness Month was designated by Congress to focus attention on the need for research and treatment of sickle cell disease.
“More than 100,000 Americans live with sickle cell disease, but because it is an invisible illness, many of them suffer in silence,” said Regina Hartfield, president and CEO of the Sickle Cell Disease Association of America.
“September is the month to speak up for sickle cell. Post to social media, attend special events, give blood, talk to your friends and family and call your representatives to shine a light on this often-overlooked condition. Every voice counts.”
The Sickle Cell Disease Association of America invites advocacy organizations, corporate and federal partners and supporters to use the hashtags #SickleCellMatters2022, #SickleCellAwarenessMonth, #SCDAA2022AwarenessMonth and #SCDSCTmatters in social media posts about sickle cell disease throughout September. More information, including a flyer and fact sheet, is available online.
Sickle cell disease is an inherited blood disease causing red blood cells to take a sickle shape, which leads to blockages that prevent blood from reaching parts of the body. As a result, people with sickle cell complications can experience anemia, jaundice, gallstones, stroke, chronic pain, organ damage and premature death. No universal cure exists. (sicklecelldisease.net)
Sickle Cell Disease Association of America advocates for people affected by sickle cell conditions and empowers community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure. The association and more than 50 member organizations support sickle cell research, public and professional health education and patient and community services. (www.sicklecelldisease.org)