FOR IMMEDIATE RELEASE
March 16, 2022
Sickle Cell Disease Association of America offers advocacy training
HANOVER, Md.—The Sickle Cell Disease Association of America will hold its annual Advocacy Day event and offer virtual training on Tuesday, April 5, from 1 p.m. to 3:30 p.m. Participants will learn how to advocate for legislative goals important to people living with sickle cell disease and their families, including promoting stable funding for research, better health care access and increased education and awareness for the sickle cell community.
To learn more and register for the Zoom event, visit bit.ly/SCDAA_AdvocacyDay.
Sickle cell disease is an inherited blood disease causing red blood cells to take a sickle shape, which leads to blockages that prevent blood from reaching parts of the body. As a result, people with sickle cell complications can experience anemia, jaundice, gallstones, stroke, chronic pain, organ damage, and premature death. No universal cure exists. (sicklecelldisease.net)
Sickle Cell Disease Association of America advocates for people affected by sickle cell conditions and empowers community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure. The association and more than 50 member organizations support sickle cell research, public and professional health education, and patient and community services. (www.sicklecelldisease.org)