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The Vitiligo Patient Journey - Episode 8

Resources for Patients With Vitiligo

Published on: 
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Ted Lain, MD, reviews available support groups, vitiligo education, and other resources for patients with the disease.

Heather Woolery-Lloyd, MD: What types of resources are available to our vitiligo patients?

Ted Lain, MD: Until recently, we didn’t have great resources. If you just Google Vitiligo Foundation, you will find resources like the Global Vitiligo Foundation, the vitiligo support group, the National Vitiligo Foundation. Ruxolitinib has really come out with some good educational material on their website. The American Academy and Dermatology for Patients has great information on vitiligo as well as many other dermatologic conditions.

Heather Woolery-Lloyd, MD:Social media can sometimes be helpful. You can find other people with vitiligo to connect with. You have to be careful because there is a lot of misinformation out there, but if you are feeling alone, it is a way to find other people who are living with vitiligo, too.

This was such a wonderful evening. I’m so happy I got to meet you, Tarasha, and spend the evening talking about your journey with vitiligo. Thank you for your bravery and for being so open and honest about how vitiligo affected your life and your journey. We are very grateful for you participating in this evening. And thank you, Dr Lain, for all of your insightful, brilliant advice and information about vitiligo. There is so much to learn. I am really excited about the research that is coming up soon.

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Transcript edited for clarity

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