Navigating Therapeutic Pathways and Transforming Care in ATTR-CM - Episode 15
Patient Engagement and Shared Decision-Making in ATTR-CM
The panel discusses the importance of shared decision-making in the care of patients with ATTR-CM. They emphasize that treatment conversations are often ongoing rather than single moments, as patients and families may need time to understand the diagnosis, the goals of therapy, and what to expect over time. The clinicians highlight the role of clear, honest communication, particularly when addressing uncertainty around disease progression or response to therapy. The group describes how patient preferences can influence treatment selection, including the choice between oral therapies and periodic injections, the desire to minimize medication burden, and the importance of maintaining independence and daily routines. They also note that caregivers are crucial partners in supporting adherence, appointment planning, and monitoring changes in function or symptoms. Ultimately, the panel agrees that successful care depends on making decisions with patients, ensuring they understand their options, and aligning treatment plans with their values, goals, and quality-of-life priorities.
The panel discusses the importance of shared decision-making in the care of patients with ATTR-CM. They emphasize that treatment conversations are often ongoing rather than single moments, as patients and families may need time to understand the diagnosis, the goals of therapy, and what to expect over time. The clinicians highlight the role of clear, honest communication, particularly when addressing uncertainty around disease progression or response to therapy.
The group describes how patient preferences can influence treatment selection, including the choice between oral therapies and periodic injections, the desire to minimize medication burden, and the importance of maintaining independence and daily routines. They also note that caregivers are crucial partners in supporting adherence, appointment planning, and monitoring changes in function or symptoms. Ultimately, the panel agrees that successful care depends on making decisions with patients, ensuring they understand their options, and aligning treatment plans with their values, goals, and quality-of-life priorities.
